Finally a day with less pain!
Interstitial cystitis has a mind of its own, it makes up the rules and you must follow. You have no choice, no control.
Two weeks ago my symptoms worsened, for what reason I do not know. I ate the same things, drank only water, took my meds… but the last two weeks have been awful. That is until today!
Finally a day of moderate pain but manageable levels. I rode my horse, played with my son in the garden on a beautiful sunny afternoon and took a short shopping trip to my favourite butchers for some local free range organic food.
Will I sleep tonight? Would be lovely to have a good sleep after two weeks of interrupted slumber. It would be the icing on the cake and Im praying this isn’t a blip. To have two good days in a row would really cheer me up!
I have received an appointment with my Consultant in four weeks time. This will be the first time I have seen him since the failed procedure on 28th December 2012. I have mixed feeling about this, on one hand I am really angry that (1) He never explained the possible negative outcomes. (2) He didn’t bother to see me post-op and (3) There was very little post-op follow up. I was left to get on with it basically.
On the other hand, what is the point of seeing him at all?! I know there is nothing more that can be done and I know I’ll just be annoyed the moment I see him, annoyed at his lax attitude to my treatment. There are no other options apart from removing the bladder.
Maybe one day scientists will create a cure or an artificial bladder… who knows!
I live in hope.