Thirty Minutes of Heaven….

That’s all it was, 30 minutes but how good it felt.

After an enforced two and a half months out of the saddle today I finally got back on. And how wonderful it was! The weather was not playing the game however, wind is not Finn’s friend. He hates it with a passion. It makes him flighty and sharp, spooking at the slightest thing.

I have to admit I was feeling anxious about riding him again. Being anxious is quite an alien feeling for me. I’ve always happily sat on anything and having had Finlay for nearly four years I have never felt unsafe or scared. But this morning I was definitely nervous. I hastily tacked up… think my speed was to just get it done and get on a soon as I could so I would stop feeling anxious. Finlay has been lunged for the past two weeks plus on the walker to try a build up a little fitness but he had stood in yesterday as I was working all day. Being aware of this added to my nervousness. I had put on a martingale too which I don’t normally ride with.

Anyway I lead him out the door and popped on. And relax…….

Well sort of! With the wind up his tail we has some nonsense but nothing too serious. The school was busy with some practising for tomorrows competition so we just calmly walked around doing some stretching. With a little trotting and a walk down the drive we were finished. Thirty minutes was enough after such a long time off… for both of us.

Tomorrow we will try again and knowing the yard will be quiet with the others away competing I will have space to potter around without horses jumping and flying past. Maybe even do some proper schooling! The IC seems calmer but this can change hour by hour. Riding today hasn’t totally lifted my spirits, the feelings of isolation and loneliness are strong but its a start and maybe one day soon I will find me again. How noticeable the change in confidence levels. I have felt this in my day to day life over the last few months but I wasn’t expecting to feel so unsure of myself this morning tacking up Finn. Maybe this recent IC flare has had a deeper effect than I first thought. Or maybe its simply the lack of my daily therapy in the saddle……. x

That Dark Lonely Place…..

That’s where I have been recently…

It is a very lonely place when you are burdened with a chronic pain condition. For the last six years I have suffered mine. Anger, despair, isolation, desperation….. but also acceptance. During the latter half of 2013 until August 2014 I had a period of normal pain. Normal pain is there every day, every morning and every night but it is manageable. I can just about function, be a mum, be a friend, be employed and enjoy my passion for all things equestrian. Life is ok, I feel blessed for my two healthy children, supportive friends, my handsome four legged boy. I can actually enjoy life.

Then the flare comes… August this year, out of the blue, no warning. Just bam! Here I am!! A big flare and the aint nothing you can do about it Im going to wreck your life for as long as I please! And so it did.

Until four days ago, as quickly as it arrived, it left. Sunday afternoon.. nothing special happening… no change in my day, what I’ve eaten, what I’ve drank….  nothing different to the last two and a half months…. its just left. Oddly I was at my breaking point the evening before. The lowest of my lows, many tears and desperately lonely.

So, four days on and I am very much hoping my body has recovered, that the inflammation has calmed. IC is a silent predator, I still have it, its still lurking in there. I can feel it every day. I still use six catheters a day…. should I dare to hope? Should I make plans? It could come back at any minute. This is my plan…. enjoy everyday. x

Its Been A While….But I’m Back!

I haven’t written for quite some time but as 2013 comes to a close I cant help but look back at this year with some relief that is nearly over.

A year ago, on the 28th of December I underwent a procedure that was to relieve me of the daily pain I’d suffered for four years. In fact what was supposed to be a new pain free chapter in my life turned out to be quite the opposite and for the first six months of 2013 life stood still.

Life became almost unrecognisable, culminating in daily doses of Tramadol. I had become nearly two stone over weight and was struggling with depression. I had no money left from my savings and getting very little help from the government. I was broken. I looked in the mirror and did not know who that person was. Where did that happy confident girl go……

Well folks, she back!!! 

I may not be free of IC, I may not be slim although I have lost 22lbs so Im getting there, but my mind is back! My clear thinking is back, my control is back, my confidence is back!!! I AM BACK!  I find it hard to put into words how I feel. If I talked about all the shitty things that have happened over the last four years it would make for depressing reading, so Im not going to. In fact all of that is gone, let go, forgotten, forgiven.

Now is the time to grab life by the whatsits and enjoy! These last horrendous few years have taught me something very important. Maybe if I hadn’t been in that hell I would never have learned to appreciate the important things in life. Many of us a bit blinkered and go through life without my care or thought, well I was a bit like that. I was kind and generous to others, I was a good friend to many, I provided for my family as a single parent.. but… I didn’t understand what appreciating life was really all about! I’d never experienced long term chronic pain, never endured financial ruin. In fact I’d never really worried about money at all. But somehow I was never really happy deep down. Now I know why!

Life teaches us many great lessons, its up to us to listen, learn and take action!

I took action, I took responsibility. I came off tramadol, I lost weight and then I made the decision to go self employed. Every time I took one of those decisions I grew. I grew in confidence and I grew an understanding of what had been wrong in my life and that I had to get to rock bottom before I could learn and ultimately change my life for the better. 

So here we are nearing the end of 2013 and I thank god we are! I still have IC, I still have no money and I still have pain everyday. But!!? I feel happy, I feel alive and I feel ready to go on into the new year, 2014… here I come!

My name is Morag and I’m back x

Is This A Turning Point?


Where to start…… Ok, the last four years have been s**t. Really really! Illness, financial ruin, relationship breakdown, moving house…… Being a single parent with a chronic pain condition has been a tough road to travel.

One constant in my life for two and a half years has been my horse, Finlay. There is not a day goes by when I don’t feel privileged to have him in my life. The time I spend with him Im not a mum, single parent with a chronic pain condition. Im just me! The girl who started riding aged 6 and never stopped. Of course as a mum I feel blessed everyday that I have two healthy happy boys but my horse time is me time!

In July this year I appeared to be having less pain on a daily basis, it was still there but not as severe. Around this time I started wearing a magnetic bracelet. I had been taking tramadol everyday so maybe that was the reason but I really wanted to get off this drug. I had started to lose weight, being 20 lbs overweight, this was a good thing. When the weight loss started I began to feel better about myself, I had control of something for the first time in years. This feeling of achievement spurred me on to come off the tramadol, which I did.

One other reason to come of the drug was I would begin a 6 week course of treatment for my IC, one day a week at hospital. So I wanted to be drug free to access whether this treatment would make any difference. The more decisions I made the more confident I became. I took on a small cleaning job a couple hours a week, Id met new friends and Finlay’s yard, and even contacted someone who has IC and lives locally to me! It was great to chat to someone who completely understood what I have been going through for five years.

So now a couple of months on, I’ve lost 14lbs, my pain is at a lower level and my self esteem is much improved. I don’t feel as insecure and I’m actually quite liking myself again.

Last week I was approached to work part time for a local lady who has three dressage horses. At first I was really unsure. Could I do the job? Could I manage pain levels? Could I use my catheters at work? Could I fit the hours around my youngest son and my own horse commitments? After much deliberation and conversations with friends (ok I know its not life or death, just a job) I decided to give it a go! In fact I am going self employed, freelance! Its a bit scary but… feel the fear and do it anyway!

So many good things have happened in the last two months. Why now? Is it because I took control of one thing in my life (my weight) Is it that when you project positivity that’s what you attract? Is it just the cycle of life, like life’s patterns? They say life changes every seven years and just over 7 years ago I met my ex. Hmmm that makes a lot of sense! So 7 years on and I’m finally turning a corner on to a new path. Who knows where it will take me. x

Ps, last week got my hair done for the first time in 12 months AND went out for a drink with friends. Well, they’d been trying to get me to the pub for three years 🙂 x

‘Could It be Magic…?’

So the song goes…. For the older reader that would be Barry Manilo or more recently ( I say recently that would be 1993) Take That.

That song comes to mind for a few reasons tonight.

As some of you know I have a chronic pain condition called IC and over that last four years it was become increasingly worse. After a conversation with a friend who lives in the US I decided to try magnet therapy.

I have no idea if this will work but Ive been wearing my silver horseshoe (of course) magnet bracelet for a week and I definitely have less pain!! Of course this is not a clinical test there could be other reasons. But if this continues I will be delighted!!

Another little piece of magic last week, an old friend came back into my life. This person has been part of my life on and off since high school and having both been through some very difficult years with other people we finally put out cards on the table and decided to take a chance. I was asked ‘are we making the same mistake’ I answered no, because after 15 years apart we are different people. Our, at times, traumatic experiences at the hands of others, have made us better people.  Be brave I said, take a chance at happiness.

Of course nothing is ever simple and the miles separate us but a visit next week is much anticipated!

Could it be magic? Well I feel I have been blessed with a little magic!  I feel loved x

Graduation Days!

This little family of mine has had some major events recently. Two graduations at opposite ends of the education system.

My youngest son who is five graduated from nursery a week ago on Friday! Complete with mortar board and certificate they had a great time! With lots of party games, balloons and general mayhem! It was a wonderful to see my little guy growing up and now ready for his first year of primary starting in August.

The second graduation was on Wednesday the 4th of July in Aberdeen. This one was a whole lot more serious, less games and balloons more pomp and ceremony! My eldest son Ben who is 22 years old this month graduated with a degree in Language & Linguistics. Four years of hard work and study finally realised! Not only did he achieve his degree but he worked his way through University to support himself financially! To say Im proud of him is an understatement!

We travelled up to Aberdeen on the Wednesday, its around 200 hundred miles or so, and stayed in a very lovely hotel. It was more than I could afford but I wanted this trip to be special for Ben, something he would remember. We had a good drive up and arrived at the Ardoe Country House Hotel mid afternoon. Set in its own country estate with spa, swimming pool and tennis courts, I could’ve stayed for a week!

I haven’t travelled much since I was diagnosed with IC so I was a little apprehensive but I managed to cope with its challenges throughout the trip. Staying in a hotel is a real novelty for my youngest son who proceeded to charm and amuse hotel staff and guests alike! Of course going to sleep even when exhausted was a tall order, he didn’t give in to the tiredness until we were all in bed and lights off around 11pm.

The following morning we had to be at the University early to collect robes and have photographs taken. Having ones photos taken that early in the morning is not for the faint hearted! I fear I may look rather old and haggard (photos have not arrived yet) However seeing my first born standing there in his robes and mortar board made me burst with pride. With his little brother gazing up at him in complete awe just made my heart melt.

Photos done, we proceeded over to the great hall. My youngest had his ipod to keep him amused during the ceremony but we did have to be seated quite some time before it actually started. As the graduates filed in I could see Ben walking to his seat, tall and proud. After all the initial introductions the chancellor lead the prayer. Cue mini melt down from youngest! Just when it all went quiet he changed games to the running dinosaur which had a very catchy theme tune. Would he turn it down? Nope! When a very pompous grumpy man turned around making obviously disapproving gestures I felt mortified. For fear of a total tantrum I did my best to reason with him, to no avail.

After 15 minutes of very bad behaviour he clamed down ( little shit!) and managed to just about see through the rest of the ceremony without further upset.

Near the end of the degree presentations it was time for Ben to receive his, until this point I had kept myself together pretty well but as soon as he made his way to the stage I felt the tears come. Tears of joy, pride and love for my son who was the first in our extended family to attend University. I quickly picked up my phone to distract myself and recorded this amazing moment in mine and my sons life.


As we (the families) were leaving the great hall, after the graduates, a very kind couple came over and said to my youngest what a good boy he was sitting through the ceremony. I said how I felt others were disgusted that Id brought my sons little brother and that he had disrupted their enjoyment. They said on the contrary and that he did really well! I felt so much better and started to relax a little.

Outside the sun was shining and we enjoyed the atmosphere, watching  everyone milling around, with some wearing amazing traditional dress of students families who were of African origin. So many different cultures, it truly was a great day!

Back at our hotel we packed and checked out, if only I could afford to stay another night. Youngest stated he wanted to stay for a 100 days!! The drive home was long, I was very tired but we arrived safely and negotiated Glasgow rush hour to get back to Ayrshire around 6pm.

Two days later I’m still on a high. The trip used up this years holiday money but it was worth it. Maybe we will have a holiday next year. x

Where Did The Time Go?

I have been rather quiet on here recently. The reason – depression, brain fog, tiredness and life being busy!

Last Thursday I drove to Aberdeen (170 miles) to collect my eldest son who has finished his degree. After four years of University life he is moving back home so in my rental van accompanied by my sons childhood friend ( or my dyslexic navigator ) we set off for the evening drive.

Nearly three hours later we arrived only getting slightly lost once! My sons flat was full of young noisy student friends who had gathered to say a big farewell. This group of around 20 had been close friends since there first year in Halls, a great bunch of kids! Popping my head round the door I said a quick hello then left for the short walk to my hotel.

This was my first night away from home since the failed bladder procedure so I was apprehensive about having to use catheters in an unfamiliar bathroom. The room was nice although the hotel a little shabby but the bed was comfy and to my relief I managed to use the catheter.

I had eaten and drunk very little in preparation for this journey in hope that it would allow me to travel/drive a long distance with minimum pain. My plan worked and although it was uncomfortable I made it there successfully. The following morning the van was loaded and we, myself, dyslexic navigator and son, drove the three hours home. I was on auto pilot by this time, climbing out the van when we arrived home, every joint and muscle ached. However to be met by my youngest (5 yr old) who came running across the yard and jumped into my arms saying how much he missed me made me forget all the aches and pains.

The following two days were filled with numerous loads of laundry (from Aberdeen) rearranging eldest sons room to his specifications, playing tennis, football, cooking, cleaning, horse duties in between a million trips to the bathroom! By Sunday night I was exhausted and of course couldn’t sleep! Why is that, when you most need a good nights sleep you never get it??

Monday morning I was hit with complete body shut down, my whole body ached. I ignored it, foolishly! By Tuesday after another crap night I knew I was having a flare, couldn’t think straight,  brain fog, joints and muscles sore, fell asleep in the afternoon. IC was pretty much awful too. Tennis elbow agony. Stomach pains. This morning it hurt just to stand on my feet. I made it to the yard and was determined to ride and after mucking out I tacked up and rode out. I felt so uncoordinated, muscles weak and aching. I HATE this!!!! Took youngest, along with eldest to the park this afternoon, it was a struggle to stay awake. By 3 pm I was in bed for a quick snooze before afternoon yard duties.

Sleeping through the day is not me! I have never been one to go for a nap, ever!!! But I cant cope with feeling so bloody rotten. The last time this happened was end of March, exactly the same symptoms.

BUT! Im going to end this moaning post with something positive. My eldest son, who is 22 yrs old in July, has completed his degree in Linguistics at Aberdeen University. I cant express how proud I am of him. Not only has he achieved this but he has grown into such a great guy! We have always been close as it was just the two of us for most of his life and one thing I drummed into him at an early age, apart from the fact that ‘everyone’ finished school and went to Uni, was to communicate. What ever the problem, talk about it! To me, to your friends, to your teacher. Communication is key. Thankfully it worked and we’ve always had a good relationship, unlike the relationship I had with my parents! I wasn’t going to make the same mistake.

So, 22 years on and now he’s ready for the next chapter in his life. Where did the time go….. x



And The Penny Drops…..

A couple of days ago I was reading an interesting blog about Fibromyalgia. As the writer detailed her triggers of the condition, suddenly the light bulb went off.

In December of 2002 after 12 months of renting various properties I bought a house. I didn’t have much in the way of help with the move so did most of the furniture removal myself. It was a long and physically demanding weekend but by the sunday night it was done and myself and Ben who was 11 years old at the time, were happy to be in our own house again.

The following day I woke up with a strange stiffness in my joints. Standing on my feet was quite painful. I thought it was just because I had lifted many heavy boxes and furniture that my body felt so stiff but as the day wore on it got worse. The next morning I had to drive 12 miles to the nearest supermarket. By the time I got there my hands were ceased up from holding the steering wheel. I couldn’t open my fingers.

I walked around the store trying to hold the shopping basket but everything I did was painful. That evening I began to suspect something was really wrong and the next day went to see my Doctor.

I was told it was viral but the Doctor took bloods to check for arthritis. A few days later my symptoms eased, the blood results were negative and I didn’t give it much more thought. That is until September 2004.

After a particularly horrible break-up with my boyfriend I had another attack of this ‘virus’ . I had to stay in bed for 3 days. It felt like my body had shut down, like I had reach my stress limit so my body said , no more, and just stopped working. I don’t know how else to explain it. Aching joints, pains, exhaustion, slight cold/flu symptoms. This time I put two and two together and realised this was a reaction to stress.

My Doctor insisted it was post viral syndrome.

Over the last 10 years I have had various attacks, never as physically debilitating as the first one but exhausting and painful none the less. And always after heightened levels of stress or trauma.

It never occurred to me until recently that this might be fibro but the more I read the more Im convinced. As an IC sufferer I realise that many who have this condition also have Fibromyalgia and all my symptoms fit what others have described. In some way it is actually easier to deal with now, knowing what it is, knowing that it will pass and doing my best to look after myself in the hope these attacks are as infrequent as possible.

I have noticed that these days it feels like a more underlining illness all the time, I never really feel well. My IC is worse now too so maybe the two are linked, if one gets worse so does the other. I have been under financial strain for over six months so my stress levels are constantly raised, this doesn’t help. But now knowing whats wrong will help me deal with it in the future.

IC : Its All An Uphill Struggle

I cant quite remember when life was last on an even keel. The days now merge into one blurred mass of pain, pills and PMT.

Well I say PMT but what really I mean is peri menopausal. Yes, Im on that road now. Oh joy! Normally this would mean mild mood swings, irregular cycle and periodic aches and pains etc But for an IC sufferer like me those ailments are the least of my worries.

For me hormones changes signal increased pain levels. Not only do I feel very emotional my pain levels are horrendous. Add the two together and what do you get? Despair.

Total despair. Ten days ago something triggered my IC from manageable pain levels to crippling all day and all night levels. I don’t know what this trigger was. I didn’t eat anything on the danger list (which is as long as your arm) I didn’t drink anything other than water. I didn’t take any strenuous exercise. So what could it be? Hormones?! I don’t even know why hormones affect IC so badly. My consultant has probably told me but I can’t remember now.

The one thing I have very little control over…. hormones. As I approach my mid forties this can only go one way. What does this mean for an IC sufferer? Well I guess Im about to find out.